That was about all he told me, so after researching some basic information, I was able to make a couple of appointments in New York City, where I had my first PET Scan and they were able to look at the biopsy samples, which confirmed I had non-Hodgkin follicular B-cell lymphoma.

Over the next 2 years, I was in watch and wait, getting blood taken and scans every 6 months, until I moved to Massachusetts and transferred my care to Dana-Farber Cancer Institute.  It was in 2014 that I discovered additional lumps in my groin area and proceeded to have radiation, which worked.

But in 2015, my lymphoma moved to my clavicle and after a biopsy, with my medical team, decided to be treated with Rituximab for a 6 month cycle, followed by a year of maintenance.  All was good, in remission, until 2018 when we discovered a very large mass on my psoas muscle and found that the treatment had not worked.

Radiation did not really move the needle, so after a cautious biopsy, we discovered that the lymphoma had transformed into a diffused large B-cell lymphoma (DLBCL).  That led to a 6-month protocol of chemotherapy with monoclonal antibody treatment.  I did not do maintenance, as a personal choice after consulting with my doctor.