Lymphoma Journey
Awaiting or Recent Diagnosis
You’re not alone – Here’s what to do next.
Receiving a cancer diagnosis is an overwhelming experience. It is perfectly normal to be shocked by the diagnosis, anxious about the future, and confused about the medical information and decisions that need to be made.
What is Lymphoma?
Lymphoma is a type of cancer that begins in the lymphatic system—part of your body’s immune system that helps fight infections. It happens when certain white blood cells, called lymphocytes, grow and multiply in an uncontrolled way.
There are many types of lymphoma, and each type can behave differently and may need different treatments, but the two main categories are:
Understanding Your Diagnosis
Doctors use several tests to diagnose lymphoma and determine the best treatment plan. These may include:
- Blood tests to check your overall health.
- Imaging tests (like CT, PET, or MRI scans) to see inside your body.
- Biopsy (removing a small sample of tissue) to confirm the exact type of lymphoma.
- Staging to understand how far the lymphoma has spread.
Your pathology report will include important details about your subtype and stage. Keep a copy for your records — it will help guide future conversations with your care team.
Receive individualized support and information. Call the Lymphoma Research Foundation Lymphoma Resource Center:
800-500-9976
[email protected]
First Steps After Diagnosis
- Take care of yourself physically and mentally.
- Seek the support of family, friends, and others on whom you trust and rely.
- Learn more about lymphoma and treatment options.
- Find medical care that meets your needs.
- Write your questions down before your appointments.
- Understand the cost of care and what your insurance will cover.
- Maintain a copy of your medical records (paperwork, test results, and your own notes).
- Download the Lymphoma Care Plan.
Building Your Care Team
Having the right team around you makes a big difference. Your care team may include:
- A hematologist/oncologist (a doctor who specializes in blood cancers).
- Nurses who guide you through treatment and side effect management.
- Social workers or patient navigators to help with emotional and practical needs.
Learn more about what to consider when constructing your care team.
What Questions Should I Ask My Doctor?
Bringing questions to your appointments can help you feel more confident and informed. Use these tips to communicate with your healthcare team, and consider asking:
- What type of lymphoma do I have?
- What stage is it?
- What treatment options are available?
- What are the possible side effects?
- Should I consider a clinical trial?
Emotional & Practical Support
A lymphoma diagnosis affects not just your body, but your mind and your family as well. You don’t have to go through it alone. Support is available through:
- Foundation Helpline to talk with a specialist who can answer questions and connect you to resources.
- Financial Support for qualifying patients struggling to cover treatment expenses.
- Peer support programs to meet others who’ve been where you are.
- Caregiver resources to support family members and friends.
Keeping your information in one location can help you feel more in control during and after treatment. Download our Lymphoma Care Plan and complete it with your care team.
Learn More About Your Diagnosis
Living With Lymphoma
Living With Lymphoma is a new virtual program that provides an overview of subtypes and treatment options through breakout sessions. This program is perfect for those who feel comfortable learning at home and gaining specific information.
Webinars
Webinars are hour-long interactive programs led by lymphoma experts who discuss the diagnosis and treatment of specific lymphoma subtypes and key research and treatment updates. Webinars feature a presentation from the featured expert, with the remainder of the time allocated to an extensive Q&A session.